

Research which documents the actual situations of people with Down syndrome has led to more complex, productive thinking:
Targeted Down syndrome-specific research, then, may shed light on


The Down Syndrome Research Institute is now the research arm of the Down Syndrome Foundation, and Down syndrome Canada. It is an exciting, passionate dedication that plays an essential role in achieving the Foundation’s ambition of improving the day-to-day life of people with Down syndrome and their families across Canada.
Founded in 2007 by Andy Loebus of London, Ontario, it ran summer schools/camps, conducted public education campaigns, and engaged in a research agenda with the Educational Psychology Department of McGill University. This influential work was suspended when Andy became ill in 2017, and it seemed that it would not be revived after Andy’s premature death in 2022.
Please be in touch if you have a topic that warrants research, or if you would like to participate in future research projects.


By becoming part of our passion and dedication to the Down syndrome community. We invite you to join in making a significant difference that brings about positive change to individuals, impacts the lives of those we advocate for but also forge lifelong friendships in building a more compassionate world. Together we can create a brighter future!
Celebrate positive abilities and support a fulfilling inclusive life for individuals with Down syndrome across Canada.